tag:blogger.com,1999:blog-3341201475686174354.post1284091748098320019..comments2023-10-30T04:40:41.119-07:00Comments on Celebrating Samantha: Tummy is a bit better :)Monicahttp://www.blogger.com/profile/02509440686368691649noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-3341201475686174354.post-67370171267410061412011-03-20T18:49:19.079-07:002011-03-20T18:49:19.079-07:00Oh goodness - I'm so glad to hear the tummy tr...Oh goodness - I'm so glad to hear the tummy troubles are improving, at least! I understand being nervous about the weaning off the vent. It would scare me, too. Will it hurt to leave the vent settings where they are for a while? If not, I'd get them to leave it until things settle a bit more and you have more comfort with the idea that you know Sam's new normal. <br /><br />You're doing an amazing job, and, as always, y'all are in my thoughts and prayers.<br /><br />Deb(batx)Unknownhttps://www.blogger.com/profile/04642921281197889639noreply@blogger.comtag:blogger.com,1999:blog-3341201475686174354.post-76611451791435893942011-03-18T07:29:32.898-07:002011-03-18T07:29:32.898-07:00So many troubles for such a wee girl. You're ...So many troubles for such a wee girl. You're all in my thoughts.SuesquatchRNhttps://www.blogger.com/profile/08430405540498968731noreply@blogger.comtag:blogger.com,1999:blog-3341201475686174354.post-20860288647235349072011-03-17T00:52:07.521-07:002011-03-17T00:52:07.521-07:00So happy to hear that her tummy is better!
I am ...So happy to hear that her tummy is better! <br /><br />I am also glad to know that they aer trying to wean her vent settings down, but completely understand why you are so weary about it! Youare right! Mito is an energy thing. Just politely tell the docs that you just don't think she's ready yet and explain it just as you have here. Tell them that you just think she needs a little bit more time to recover. After all she's been through, she needs to have some space for recovery, you can't just push stuff on a mito kid. They like to do that with Quinn with feeds and it ALWAYS ends horribly. It may LOOK like she's doing ok, but sometimes, she's just not ready and eventually, it catchs up to her. <br /><br />It's probably a bit differetn with a trach, but much in the same as well. It is an adjustment for you too as you get used to Sam's "new normal". <br /><br />Thinking of you! i'm just really happy to hear that Sam is doing ok.Sarahhttps://www.blogger.com/profile/00555971257314801156noreply@blogger.com