Saturday, August 14, 2010

Saturday morning run...and a video montage

For the first time in a very long while, I took Samantha out for a run this morning in the jogging stroller. We went to a local park that is only a five minute drive from our house.  The park has a mile loop which is hilly and mostly gravel, although it does have some forgiving sections of brick to break up the gravel. The last time I did anything this ridiculous was when our baby was much lighter (perhaps a year and a half ago now??)--and I was a few pounds lighter myself.  Oh how I miss the days of breastfeeding when I could eat whatever I wanted and still felt lean and mean.....

Sam seemed to have a great time. She was dancing around in the stroller, saying "Hi" to everyone we passed, and she was keeping her sunglasses on to look "cool"...because she rolls like that.


Holy moly that was harder than I thought it would be. Quite humbling, to say the least.

Usually, I run on the treadmill at home while Sam watches Sesame Street. It is a little different to run outside in the sun, on gravel, uphill, and pushing a stroller with a toddler in it. I was heaving like crazy but did manage 3 whole miles despite the pain. Originally planning on doing more miles, I used the excuse of "I've got to get her out of the's getting too hot". Truthfully she was fine (although it's tough to gage how hot it is when you are sweating bullets and at the time I was almost concerned about her heat intolerance). The reality was that sweat was burning my eyes, and my lungs were about to explode.

When it starts to get cooler I will have to try again sometime soon, since she enjoyed the ride so much.

Just for fun this beautiful Saturday, I'll share a video montage I made a couple of weeks ago of Samantha's early days. I THINK the last clip was when she was almost 2..but then the song was over so I didn't add any more clips. The song in the background is one that Val has been singing to her forever. The video is almost 4 minutes long. So, since she's not your kid I'll understand if you don't want to watch the whole thing. ;)


  1. Hi monica, LOVED the video--despite she not being mine! Youre too funny, she is worth every minute to watch! She is beautiful, love her little giggles too :)

    Nice to see your blog link on p2p. I havent been there much lately but trying to keep up with all Jacks little mito friends. Seeing Sam walk reminded much like Jack at that age, he didnt take his first steps until he was nearly 2.5 years old.

    I was reading your blog posts and read about the MRS results. Can I ask you what you were told about the lactate peaks found? Jacks last MRS showed the same, obviously worrying me. I suppose a sign of progression but theres no way of knowing I guess without another one showing more--or does it mean they are always present or do they come and go? Who knows, I try not to let it bother me but thats what us mommys do!

    Im glad Im able to follow your amazing little girl now, hugs to her tonight & you too--
    Heidi & Jack
    {Life with Jack}

  2. Hi Heidi! To be honest I'm not sure "what" the lactate peaks mean for us right now other than it is a sign of mito. Our doctor (neuro) wasn't too specific regarding that finding in particular other than agreeing it pointed to mito. Her 2nd MRI was "worse" so he focused more on talking about that. (really so far her symptoms are neurological and now more recently eye related)

    Since Samantha is not diagnosed officially yet we are just treating it as another "sign" pointing to mito. It was her first MRS--so we have no comparison. I have done some extensive reading however, (the internet sleuth that I am), and it seems that in general for mito kids at times the peaks may come and go depending on the "stressors" present. So, it may be something that "comes and goes" but of course further testing would prove/disprove that for any particular kid. As usual, clear as mud right?

    Prior to seeing this message I just joined your "blog" and as I stated there--it's AMAZING!!! You are quite talented and your kids are so amazing. Keep up the good blogging! Looking forward to following the sweet little Jack!

    And if you are ever in our area--you are welcome to do a photo shoot with Sam!!!

    Take Care and hugs to you all,