Samantha continues to get better following her bout with RSV a few weeks ago. Sammy is still on her vent at night and also getting her overnight tube feeds. We feel the combination seems to have brought back some of her spunk that she was missing a month or so ago. She is toddling more and seems to have more energy than she had about a month ago.
While Val and I are upset that we won't be removing the trach anytime soon, we are very happy that adding back in those two things seems to be helping again. And of course, Samantha continues to take EPI-743 which we feel is doing wonders for her.
Until next time,