Yesterday marked one year ago that Samantha went into respiratory failure. I can't imagine that we almost lost her. The events of that day will always be cemented in my memory. Our family surrounding us while our little girl was being saved by the team at CHOP. To call it a surreal moment is definitely an understatement.
This past year has been a roller coaster of emotions, hospital stays, ER visits, nursing schedules and lots of new equipment to adjust to. Val and I went from thinking we may lose her within a week, to watching her get back to herself and then some, to thinking we would be able to remove the trach, to realizing that at least for now, the trach has to stay.
And by the trach/vent staying, that means that we keep the equipment, the extra bags, the nursing care. The crazy that is our daily lives.
Val and I are always trying to adjust to whatever has been thrown at us....all the while making sure that Samantha has the best time she possibly can. If her disposition is any indication, she seems to be having a ball. Despite her health issues and various accessories, we have been rewarded with one of the most loving, smiling, sweetest little girls. As usual, I have no idea what the future will hold. But, I suppose that is true for all of us.
Until next time,